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Neuropathy Week 2011

The Neuropathy Association is the leading national non-profit organization serving the peripheral neuropathy community.  We provide support and education, advocate for patients’ interests, and promote research into the causes of and cures for neuropathy. Learn more about The Neuropathy Association…


Action Alert: Let Your Senators Know You Support The Inclusion of Neurologists for the Primary Care Bonus

Take Action Neurology
Sen. Amy Klobuchar (D-MN) recently introduced S. 597 which would add neurology to the list of physicians eligible for the primary care incentive in the Patient Protection and Affordable Care Act (PPACA). The Neuropathy Association has been working with the American Academy of Neurology and other organizations on this top priority advocacy issue since neurology’s omission from the health care reform bill. We need your participation to assure that you and all neuropathy patients—as well as patients with other neurological diseases—have continued and timely access to highly trained neurologists for the care you need, when you need it.

Write to your Senator now!

 

May 16-20 is National Neuropathy Week!

National Neuropathy Week is just around the corner and we are excited about engaging the community—and the public at large—in our awareness campaign to help us collectively take the conversations on neuropathy up a few notches! Here’s a quick line-up of the National Neuropathy Week activities we are launching via our communication channels:
    - May 16: “Talk Neuropathy” with Mother
                       Dolores Hart
    - May 17: Show Your Support for Vital
                      Neuropathy Programs
    - May 18: “Talk Neuropathy” with Sarah
                      Manguso
    - May 19: Inform Your Legislators About
                      the Scope of Neuropathy
    - May 20: “Talk Neuropathy” with Pia
                       Lindström.

Sign up for National Neuropathy Week alerts!


2010 Neuropathy Summit in Washington, D.C.
Advances Neuropathy Education for Patients and Physicians

2010 Neuropathy Summit
Tina M. Tockarshewsky, President and CEO of The
Neuropathy Association, opens the 2010 Neuropathy
Summit in Washington, D.C.

Our groundbreaking 2010 Neuropathy Summit just held on December 3-5 in Washington D.C. offered patients and health care professionals an opportunity to come together to exchange knowledge and directly address the neuropathy epidemic currently impacting over 20 Million Americans.  By giving a focus to “Probing the Paradoxes of Neuropathic Pain,” the Summit’s content addressed the issues and challenges in diagnosing and treating the many forms of peripheral neuropathy while targeting the number one issue for many patients:  chronic and often debilitating neuropathic pain.

With back-to-back patient and physician conferences, the 2010 Neuropathy Summit gathered close to 400 neuropathy patients, caregivers, family members, physicians, scientists, clinical researchers, industry representatives and policy makers to discuss the state of peripheral neuropathy care and treatment today, advance our education about a multi-disciplinary approach to neuropathy and neuropathic pain, and call for greater awareness and understanding for this greatly underappreciated illness impacting so many across the U.S. and around the World.

The 2010 Neuropathy Summit provided greater education and awareness so, together, we can advance our understanding of neuropathy, create momentum for better patient treatments, and, ultimately, cures.  Be sure to visit our site in coming days for more Summit news, pictures, and educational updates from this first-ever Neuropathy Summit event.


Neuropathy Newsbytes

AAN Publishes Guideline on Best Treatments for Painful Diabetic Neuropathy

AAN April 2011

The American Academy of Neurology (AAN) recently published  an evidence-based guideline on the most effective treatments for painful diabetic neuropathy. These guidelines were developed to provide clinicians with a scientifically sound and clinically relevant guideline for the treatment of painful diabetic neuropathy.

Association's 2009 Scientific Research Grants

Grant Recipients

The Neuropathy Association announced Dennis Paul, Ph.D. and co-principal investigator, Harry J. Gould, M.D., Ph.D. of Louisiana State University Health Sciences Center and Glaucia C. Furtado, Ph.D. of Mount Sinai School of Medicine as recipients of its 2009 scientific research grant awards.

 

 

community outreach

Empire State Building Lights Up Purple and Gold for Neuropathy Awareness!

ESBC4NNW2010
The Empire State Building design is a trademark of ESBC and is used with permission
(Photo by: Richard Lewin)

On May 20th, the Empire State Building joined the neuropathy community to raise neuropathy awareness, recognize National Neuropathy Week, and observe The Neuropathy Association's 15th anniversary! The Neuropathy Association would like to thank the Empire State Building for this special lighting during National Neuropathy Week. View community photos.

 


Neuropathy Video Submitted for 2011 Neuro Film Festival

Angela Macropoulos—a member, caregiver, blogger, and advocate for our community—recently submitted a video for the 2011 Neuro Film Festival hosted by the American Academy of Neurology (AAN). We appreciate all those who voted for the film to be screened at the festival held during the AAN's annual meeting in April. While this video did not win, we hope it empowers you to submit your own video next year!


Peripheral Neuropathy is one of the most common chronic diseases in the U.S…over 20 million Americans have it. Peripheral neuropathy or “nerve damage” disrupts the body’s ability to communicate with its muscles, skin, joints, or internal organs.  Peripheral neuropathy can be compared to the body’s electrical wiring system breaking down, causing numbness, pain, weakness and poor coordination. Learn more about Peripheral Neuropathy...

Did you know that "neuropathy" is frequently misspelled by people searching for information about causes, symptoms and pain treatment online?  It's true!  Some of the most common misspellings we frequently see are neuropothy, nueropothy, neurophy, neuopathy, nuropathy, neurapathy, neurothopy, nueropothy, nuropothy, neoropathy, and neropothy.

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